Priority Setting Partnership

Written By AB

The TOPClass Consortium led a Global Priority Setting Partnership in collaboration with the James Lind Alliance. This initiative brought together patients, clinicians, and researchers from around the world to identify and rank the most important unanswered questions in perianal Crohn’s disease. Through this collaborative process, we established a set of research priorities that now guide the consortium’s scientific agenda. This work provides a roadmap to ensure that future studies address the issues that matter most to those living with and treating this complex condition.

Find out more about Perianal Crohn’s Disease.

Related Research Groups

Featured
The Fistula Research Unit at St. Mark’s Hospital
Europe
The Fistula Research Unit at St. Mark’s Hospital
Europe

City: London | Country: United Kingdom
The Fistula Research Unit at St. Mark’s Hospital is headed by Professor Ailsa Hart and Mr Phil Tozer. The centre has a strong history of championing research in the field of perianal Crohn’s Disease and progressing the medical and surgical management of perianal fistula. 

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Europe
University of Chicago Medical Center, Chicago, U.S.A 
America
University of Chicago Medical Center, Chicago, U.S.A 
America

City: Chicago | Country: USA

Consortium description coming soon

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America
University of British Columbia, Vancouver, Canada 
America
University of British Columbia, Vancouver, Canada 
America

City: Vancouver | Country: Canada

Astrid Williams has joined the team at the IBD centre of B  in 2024. From 2018 to 2023, she was a Staff Specialist Gastroenterologist at Liverpool Hospital in Sydney, Australia.

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America
Cambridge University Hospitals NHS Foundation Trust
Europe
Cambridge University Hospitals NHS Foundation Trust
Europe

City: Cambridge | Country: United Kingdom

Dr Nuru Noor is a Clinical Lecturer in Gastroenterology based at the University of Cambridge in the UK. He also works as an Honorary Postdoctoral Research Associate at the Medical Research Council Clinical Trials Unit 

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Europe
Cleveland Clinic, Abu Dhabi
Middle East
Cleveland Clinic, Abu Dhabi
Middle East

City: Abu Dhabi | Country: United Arab Emirates

Dr. Sara El Ouali is a consultant gastroenterologist at Cleveland Clinic Abu Dhabi (CCAD) and is an Assistant Professor of Medicine at the Cleveland Clinic Lerner College of Medicine in Cleveland, Ohio …

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Middle East
Nottingham Fistula Research Group
Europe
Nottingham Fistula Research Group
Europe

City: London | Country: United Kingdom

The Fistula Research Group at the University of Nottingham and Motilent is at the forefront of research in perianal Crohn’s disease and Inflammatory Bowel Disease.

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Europe
The Proctology Department at Hôpital Paris Saint-Joseph
Europe
The Proctology Department at Hôpital Paris Saint-Joseph
Europe

City: Paris | Country: France

The Proctology Department at Hôpital Paris Saint-Joseph is a department specialising in the medical, instrumental and surgical treatment of diseases of the anus. 

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Europe
Icahn School University Hospital of Ghent
Europe
Icahn School University Hospital of Ghent
Europe

City: Ghent | Country: Belgium

The perianal fistulizing Crohn’s disease clinical and research program at The Susan and Leonard Feinstein Inflammatory Bowel Disease Clinical Center at Mount Sinai is co-led by gastroenterologist Dr. Serre-Yu Wong and colorectal surgeon Dr Sergey Khaitov.  

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Europe
Icahn School of Medicine at Mount Sinai
America
Icahn School of Medicine at Mount Sinai
America

City: New York | Country: America

The perianal fistulizing Crohn’s disease clinical and research program at The Susan and Leonard Feinstein Inflammatory Bowel Disease Clinical Center at Mount Sinai is co-led by gastroenterologist Dr. Serre-Yu Wong and colorectal surgeon Dr Sergey Khaitov.  

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America
IBD Leuven Fistula Research Unit
Europe
IBD Leuven Fistula Research Unit
Europe

City: Leuven | Country: Belgium

The perianal Fistula Research Program within the IBD referral centre of UZ/KU Leuven is coordinated by colorectal surgeons Gabriele Bislenghi and André D’Hoore and gastroenterologists Séverine Vermeire and Bram Verstockt.

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Europe
Washington University School of Medicine in St. Louis
America
Washington University School of Medicine in St. Louis
America

City: Washington I Country: America

The Fistula Research Unit at St. Mark’s Hospital is headed by Professor Ailsa Hart and Mr Phil Tozer. The centre has a strong history of championing research in the field of perianal Crohn’s Disease and progressing the medical and surgical management of perianal fistula.

Read more →
America
St Vincent's Hospital Melbourne Fistula Research Group
Australia
St Vincent's Hospital Melbourne Fistula Research Group
Australia

City: Melbourne | Country: Australia

The St Vincent's Hospital Melbourne Fistula Research Group is a passionate team of Australian researchers based in Melbourne, focused on expanding current and future research in the area of perianal fistulising Crohn’s disease. Our expert research team includes colorectal surgeon Dr. Cori Behrenbruch and Mr Michael Johnston, radiologist Dr. Leon Winata, gastroenterologists A/Prof John Ding and Dr. Michael De Gregorio, and research fellow Dr. Imogen Hartley and Dr Nicholas Clark.

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Australia
Lightner Lab at Calibr Skaggs in San Diego, US
America
Lightner Lab at Calibr Skaggs in San Diego, US
America

City: San Diego | Country: United States

Led by Dr. Amy Lightner, a colorectal surgeon and Professor of Molecular and Cellular Biology and Professor of Immunology, the Lightner Lab at Scripps Research is dedicated to pioneering research in inflammatory bowel disease (IBD) and advancing novel treatment strategies for both complex luminal disease and perianal fistulizing disease…

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America
The IBD Unit at Santa Cruz Hospital
South America
The IBD Unit at Santa Cruz Hospital
South America

City: Sāo Paulo | Country: Brazil

The IBD unit at the Santa Cruz Hospital, led by Prof. Dr. Natália Queiroz, is a recently established team, just three years old. Despite being a young unit, we are committed to providing multidisciplinary care with a patient-centered approach to treating IBD

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South America

Publications and Articles

Featured
Perianal Fistulising Crohn’s Disease – Associated anorectal and fistula cancers: Systematic Review and Expert Consensus 
Publications
Perianal Fistulising Crohn’s Disease – Associated anorectal and fistula cancers: Systematic Review and Expert Consensus 
Publications

A global TOpClass review and expert consensus outlining the small but significant risk of anorectal and fistula-associated cancers in long-standing perianal Crohn’s disease, with practical guidance on risk awareness and prompt investigation of new or changing perianal symptoms.

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Publications
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